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Published: June 14, 2021

Patient and public partners are most likely to be engaged in the execution of research and least likely to be engaged in the preparatory stages of research, say experts from the MIRA | Collaborative for Health & Aging.

These findings are included in a research brief of a systematic review of the literature on how, when, and with what impact older adult research partners contribute to health research.

The research brief entitled Older people as research partners: a systematic review of implementation and impact provides a summary of key points, what the research is about, how the research was carried out, results and recommendations.

The review included a search of five databases of published literature from 2000 to 2019 to find English articles about engaging older adults as partners in health research in any care setting (e.g., acute care, long-term care, community). Most of the 33 included studies that were carried out in the community setting.

This research brief and systematic review were developed by the Collaborative’s patient engagement group of experts, led by Drs. Rebecca Ganann and Julia Abelson. Their aim is to advance the science of patient engagement to ensure representation of patient needs, perspectives, and aspirations at all levels of health care decision-making.

The MIRA | Collaborative for Health and Aging is co-led by Maureen Markle-Reid, Co-Scientific Director of the Aging, Community and Health Research Unit (ACHRU) and Parminder Raina, Scientific Director of the McMaster Institute for Research on Aging (MIRA).

To access the research brief, click here.

Published: April 13, 2021

Health and aging research experts at the MIRA | Collaborative for Health & Aging have created an online learning module to help researchers develop and expand projects into successful patient-centered innovations. A one-minute trailer provides a quick overview that outlines the content of the learning module.

The Scale and Spread of Health Interventions Learning Module is for researchers who want to bridge the gap between aging research and clinical practice. It provides researchers with the tools to successfully plan and scale-up effective health-care programs.

It is designed to help researchers gain an understanding of how to:

• assess scalability;
• develop a four step scale-up plan;
• implement a scale-up plan;
• learn from success of the Aging, Community and Health Research Unit Community Partnership Program and Health Tapestry projects.

Funded by the Ontario SPOR SUPPORT Unit (OSSU), the Collaborative was formed in 2019 by the McMaster Institute for Research on Aging (MIRA) and the McMaster School of Nursing’s Aging, Community and Health Research Unit (ACHRU). Parminder Raina and Maureen Markle-Reid, who are scientific directors of MIRA and ACHRU respectively, co-lead the Collaborative with Michael Wilson, Assistant Director of the McMaster Health Forum.

This new learning module was developed by the Collaborative’s patient-centred innovation group of experts, led by Drs. Maureen Markle-Reid and Jenny Ploeg, Scientific Directors of the ACHRU and Drs. Kathryn Fisher and Larkin Lamarche. Their aim is to support the co-design, implementation, evaluation, scale and spread of integrated, patient-centred innovations.

To watch the one-minute module trailer, click here.

To access the learning module, click here.

Published: January 13, 2021

To ensure decision-makers have access to the best COVID-19 science in a timely manner, the federal government is investing $1 million to support the COVID-19 Evidence Network to support Decision-makers (COVID-END) hosted at McMaster University.

The network, led by MIRA Collaborative member, John Lavis will bring together experts to collaborate and rapidly synthesize the best available evidence across the full breadth of Canada’s COVID-19 pandemic response.

By providing timely access to the latest research on public health measures, clinical management, health-system arrangements, and economic and social impacts, policymakers will better understand the impact that these measures have on Canadians’ health and safety.

In announcing the grant, federal Minister of Health Patty Hajdu, said: “Our response to COVID-19 has always been informed by the latest science and evidence, which we get from our internationally-respected Canadian researchers. 

“Through the COVID-19 Evidence Network, our best and brightest will work with provincial, national and international partners so that decision-makers get the information we need to keep Canadians safe throughout the next phase of this pandemic. Through this network, we will ensure that Canada continues to be a global leader in COVID-19 research.”

Lavis, who is also a McMaster professor of health research methods, evidence, and impact, said the network will work with Canadian and international partners to better develop and coordinate groundbreaking research on COVID-19, while reducing the duplication of efforts so experts can focus on the latest research and developments to keep Canadians safe.

“The COVID-19 Evidence Network will use a highly collaborative approach to rapidly synthesizing the best available evidence about key COVID-19 topics – in timelines ranging from four hours to 10 days – in response to requests from decision-makers,” said Lavis.

“The network will identify emergent issues where synthesized evidence is needed as well as profile the best available evidence syntheses on all key COVID-19 decisions. We will work with both domestic and international partners to reduce duplication and enhance coordination in the COVID-19 evidence response.”

The Canadian government is supporting the COVID-19 Evidence Network through the Canadian Institutes of Health Research (CIHR) so they may provide the latest evidence to decision-makers at the federal, provincial, and territorial levels.

Formation of the network also recognizes that while the arrival of vaccines brings hope for the eventual ending of the pandemic, there are still critical knowledge gaps that must be filled to further support ongoing decision-making as we respond to this virus to keep Canadians safe.

“The COVID-19 Evidence Network will focus on synthesizing the evidence we already have and identifying evidence gaps that exist,” said Michael Strong, CIHR president.

“The network will use a highly collaborative approach to rapidly synthesizing evidence for improved decision-making. To ensure sensitivity to how COVID-19 and COVID-19 responses can affect different groups in different ways, the network will apply principles of equity, diversity and inclusion in all of its work.”

Co-leads with Lavis on the network are Jeremy Grimshaw from the Ottawa Hospital Research Institute, Andrea Tricco of the SPOR Evidence Alliance, which is based at St. Michael’s Hospital of Unity Health Toronto, and Nancy Santesso of Cochrane Canada, based at McMaster University. Lavis also holds the Canada Research Chair in Evidence-informed Health Systems.

The network will build on nine months of experiences in preparing COVID-19 rapid evidence profiles and on many years of experience with the SPOR Evidence Alliance and Cochrane Canada in preparing rapid evidence syntheses, said Lavis.

The project will maintain a publicly available inventory of the best evidence syntheses for COVID-19 decisions to ensure that Canadian decision-makers have the most updated science available when needed, and will establish a Canadian panel to complement its existing global horizon-scanning panel that monitors emerging issues where evidence syntheses are needed.

This article was first published by the Faculty of Health Sciences, McMaster University. Read the original article. 

Published: December 14, 2020

A step-by-step guide to plan for and involve patient, caregiver, and public research partners is now available online at miracollaborative.ca under ‘Resources’.

Developed by researchers from the MIRA Collaborative for Health & Aging, this guide outlines core principles like clear communication, information exchange, empowerment, transparency, mutual respect and responsiveness. Researchers can also learn best practices for recruitment, orientation and meetings.

Funded by the Ontario SPOR SUPPORT Unit (OSSU), the Collaborative was formed in 2019 by the McMaster Institute for Research on Aging (MIRA) and the McMaster School of Nursing’s Aging, Community and Health Research Unit (ACHRU). Parminder Raina and Maureen Markle-Reid, who are scientific directors of MIRA and ACHRU respectively, co-lead the Collaborative.

This new guide has been developed by the Collaborative’s patient engagement group of experts, led by Dr. Julia Abelson, Professor, Department of Health Research Methods, Evidence, and Impact (HEI) and Dr. Rebecca Ganann, Assistant Professor, School of Nursing. Their aim is to advance patient engagement to ensure representation of their needs, perspectives, and aspirations at all levels of health care decision-making.  

To access the step-by-step guide, click here.